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  1. Bøger
  2. 6-9 år
  3. Fortællinger 6-9 år

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2.0(2)

The family : in the spiral of rare diseases

As soon as her son Enzo was born, Cindy "knew" that something was wrong. Months of isolation, mistrust and misunderstanding followed... a period of diagnostic wandering typical of rare diseases.

Cindy, Lola and Enzo tell their stories of how a rare disease is a daily struggle for families. It's a battle in which each one of them fights his or her own battle... as mother, sister and patient.

"In the world of rare diseases, this manga becomes a beacon of hope. Through its stories, it highlights the challenges, resilience and victories of families affected by myasthenia gravis. A powerful testament to the strength of the rare disease community. We are grateful to Fondation Ipsen for its essential support."

Michael Wilbur

Director of Operations, EURORDIS-Rare Diseases Europe

"This is the story of three heroes: Enzo, his sister and his mother. Through them, we see courage, strength, solidarity and eternal love."

James A. Levine

MD, PhD, Professor, Fondation Ipsen, President

ABOUT THE AUTHOR

At the age of 20, Céline Gaudet decided to transform her passion for manga into a profession. She left Montreal to take courses under the direction of a Japanese manga teacher, at AAA-Ecole de Manga. She writes under the pseudonym Reptilian.


Forfatter:

  • Reptilian

Format:

  • E-bog

Varighed:

  • 193 sider

Sprog:

engelsk

Kategorier:

  • 6-9 år
  • Fortællinger 6-9 år
  • Tegneserier og humor
  • Manga

Mere af Reptilian

Spring listen over
  1. La familia : en el engranaje de las enfermedades raras

    Reptilian

    book
  2. La famille : Dans l'engrenage des maladies rares

    Reptilian

    book
  3. Mujer a bordo : Equidad en la Ciencia

    Reptilian, Author Peytavin

    book
  4. La Montagne de la boccia : Programme "Jeux Paralympiques"

    Reptilian

    book
  5. The Boccia Mountain : Program "Paralympic Games"

    Reptilian

    book
  6. One of a Kind : Equity in Science

    Reptilian

    book
  7. Femme à bord : Equité en Sciences

    Reptilian

    book

Andre har også læst

Spring listen over
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    book
  3. Gender Chaos : Equity in Science

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    book
  4. The eXpets

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    book
  5. Aychu Saves The Park (Vol.1)

    Fabelizer Movies One LLP

    book
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  7. The Monster of Frankenstein

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    book
  8. Comic Con Artist

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    book
  9. Compu-M.EC.H. Quarterly

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    book
  10. Glass Ceiling : Equity in Science

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    book
  11. Compu-M.EC.H. Quarterly

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    book
  12. So, You Want to Work with Animals? : Discover Fantastic Ways to Work with Animals, from Veterinary Science to Aquatic Biology

    J. M. Bedell

    book

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